首页-癫痫患者互助会

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        <h5><a href="/huodong/642e92efb79421734881b53e1e1b18b6" target="_blank">英国癫痫专家解读：儿童癫痫的前沿治疗及日常护理</a></h5>
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            <p><strong>开始时间：</strong>2018-04-19 14:00，<strong>结束时间：</strong>2018-04-19 17:00</p>
            <p><strong>活动地点：</strong>北京 </p>
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                已经有<strong><a href="/huodong/642e92efb79421734881b53e1e1b18b6" target="_blank">1</a></strong>人参加 <a href="/huodong/642e92efb79421734881b53e1e1b18b6" class="cj_btn">我要参加</a> 
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    <span style="display: inline-block;">2018-12-08</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
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<h5><a href="/article/77369e37b2aa1404f416275183ab055f" target="_blank">罕见病申请和救助</a></h5>
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            <p> 2015年5月开始财政部设立中国出生缺陷干预救助基金会，对大家看病进行医保外费用的报销，这是国家行为，是当年北京的医学专家给温家宝总理提出的建议后，温总理亲自确定的一项慈善工作。条件是：1、患者年龄在14岁以下发病。2、三级甲等医院确诊的疾病，并开出诊断证明书（北大医院和301医院等）。3、家长填写申请表（网上有）4、提交疾病诊疗资料和医院的发票、5、... </p>
            
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        <a href="/article/mlist/07563a3fe3bbe7e3ba84431ad9d055af" class="mod_cat" target="_blank">癫痫相关政策</a>
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    <span style="display: inline-block;">2018-09-28</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
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<h5><a href="/article/73e0f7487b8e5297182c5a711d20bf26" target="_blank">第五节《Rett综合征》</a></h5>
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            <p> 范珊珊Rett综合征最初是由奥地利的AndresRett博士于1966首次报道，当时发现有22名儿童，均是女孩，表现出部分获得性技能丧失，比如手部技能障碍和交流障碍，这种严重的神经系统发育异常性疾病，就以首次发现者的医生名字命名，称为Rett综合征（RS，RTT）。20年后，随一份来自瑞典、葡萄牙和法国的35名受影响女孩的报道后广为人知。Rett综合征... </p>
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    <span style="display: inline-block;">2018-12-04</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
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<h5><a href="/article/af3303f852abeccd793068486a391626" target="_blank">增强免疫力需要的物质</a></h5>
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            <p> 下图是每个人身体应有的免疫力需要具备的物质，可以通过血常规检测对比，增加这些维生素和微量元素的含量，增强身体的免疫力。 </p>
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    <span style="display: inline-block;">2018-02-18</span>
    <span> - <a href="/home/user/6974ce5ac660610b44d9b9fed0ff9548">天使在人间</a></span>
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<h5><a href="/article/7eb7eabbe9bd03c2fc99881d04da9cbd" target="_blank">癫痫外科之SEEG（立体三维脑电图）</a></h5>
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            <p> 说起癫痫，普通人对它最熟悉的称谓还是“羊癫疯”、“抽疯”等等，是一种需要长期药物治疗的慢性疾病。国际抗癫痫联盟把癫痫定义为一种脑部疾病，其特点是脑部持续存在易导致癫痫反复发作的易感性，以及由于这种发作引起的神经生物、认知、心理和社会后果，癫痫的诊断要求至少有一次发作。绝大多数癫痫是可以药物控制的，只有少部分患者发展为药物难治性癫痫，因此就需要癫痫外科手... </p>
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    <span style="display: inline-block;">2017-09-01</span>
    <span> - <a href="/home/user/6974ce5ac660610b44d9b9fed0ff9548">天使在人间</a></span>
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<h5><a href="/article/96a93ba89a5b5c6c226e49b88973f46e" target="_blank">见到有人癫痫发作 别再掐人中、掰嘴巴了</a></h5>
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            <p> 癫痫发作时牙关紧闭力量很大，硬掰嘴巴撬开牙齿可导致骨折、脱臼、牙齿崩掉观察病人癫痫发作的细节表现并告诉医生，对诊疗很有帮助。@视觉中国经常有新闻报道说，热心人士遇到有人倒地抽搐，口吐白沫，判断是癫痫发作，就上去掐人中、掐虎口，掰开病人的嘴巴，往其中塞毛巾、钥匙、汤勺等“防止咬断舌头”，还喂水喂药，忙得不亦乐乎。这些义举充满正能量，然而其中一些做法往往是... </p>
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        <a href="/article/mlist/a8abb4bb284b5b27aa7cb790dc20f80b" class="mod_cat" target="_blank">癫痫急救</a>
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    <span style="display: inline-block;">2017-08-24</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
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<h5><a href="/article/3e15cc11f979ed25912dff5b0669f2cd" target="_blank">基因公开课第三节《全外显子组测序在癫痫疾病中的应用》</a></h5>
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            <p> 2017-05-05 范珊珊 赛福基因 这次主要从以下三个方面进行简单的介绍：癫痫的简单介绍，以及癫痫疾病为何适宜进行基因检测，全外显子组测序对于癫痫疾病辅助诊疗的意义。癫痫是一种由多种病因引起的慢性脑部疾病，以脑神经元过度放电导致反复性、发作性和短暂性的中枢神经系统功能失常为特征，是神经内科最常见的疾病之一。癫痫在任何年龄、地区和种族的人群中都有发病... </p>
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    <span style="display: inline-block;">2017-08-09</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
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<h5><a href="/article/84f0f20482cde7e5eacaf7364a643d33" target="_blank">基因公开课第二节《神经系统遗传病基因检测简介》</a></h5>
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            <p> 2017-04-20 范珊珊 赛福基因今天我们来共同探讨一下关于神经系统遗传病基因检测技术的一些简单知识。这次主要从以下三个方面进行简单的介绍：神经系统遗传病基因检测的一些简单知识，包括OMIM数据库的简单介绍；单基因遗传病的遗传方式以及神经系统遗传病的基因检测技术选择。第一部分：我们来讲一下OMIM数据库。由美国JohnsHopkins大学医学院Vi... </p>
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    <span style="display: inline-block;">2017-08-09</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
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<h5><a href="/article/3c1e4bd67169b8153e0047536c9f541e" target="_blank">基因公开课第一节《基因检测简介》</a></h5>
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            <p> 2017-04-07 范珊珊赛福基因 今天我主要从以下两个方面介绍一下基因检测的基础知识，一是基因，包括细胞、染色体、DNA、基因的简单介绍。另一是基因突变，包括基因突变的概念介绍，基因突变的来源以及基因突变的类型及对蛋白的影响等。在精准医疗中基因检测这个领域，有一个很著名的事件——安吉丽娜朱莉事件。安吉丽娜朱莉一家有肿瘤的家族史，她的母亲、祖母和曾祖... </p>
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    <span style="display: inline-block;">2017-08-09</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
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<h5><a href="/video/8d7d8ee069cb0cbbf816bbb65d56947e" target="_blank">判断基因变异的致病性</a></h5>
       
      
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    <span style="display: inline-block;">2017-08-04</span>
    <span> - <a href="/home/user/eccbc87e4b5ce2fe28308fd9f2a7baf3">雨泽</a></span>
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<h5><a href="/article/83e8ef518174e1eb6be4a0778d050c9d" target="_blank">什么是癫痫？</a></h5>
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            <p> 作为司令部的大脑是通过发放正常电信号来控制人体活动的，而癫痫则是大脑反复发作性的异常放电。当脑细胞过度兴奋，快速甚至爆发式发放杂乱无章的电信号，便导致了癫痫发作。当它发生时，可能会有一些奇怪的感觉或表现如肌肉僵硬、抽动甚至失去知觉。大部分人在几分钟内可恢复正常。 </p>
            
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        <a href="/article/83e8ef518174e1eb6be4a0778d050c9d" class="view" title="浏览" target="_blank"><s class="act_sprite"></s> 1117</a> <a href="/article/83e8ef518174e1eb6be4a0778d050c9d" class="reply" title="回复" target="_blank"><s class="act_sprite"></s> 0</a>
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    <span style="display: inline-block;">2017-08-03</span>
    <span> - <a href="/home/user/6974ce5ac660610b44d9b9fed0ff9548">天使在人间</a></span>
</div>

<h5><a href="/article/309fee4e541e51de2e41f21bebb342aa" target="_blank">中国有多少癫痫患者</a></h5>
        <div class="summary">
            <p> 导读：者及家属对癫痫缺乏必要的科学认识，认为癫痫是治不好的病，对医疗缺乏信心，或听信传言，有病乱投医，导致疾病未得到有效治疗，反而给经济和身心带来沉重负担。有多少人，得了癫痫病癫痫病，有什么症状2005年国际抗癫痫联盟（ILAE）对癫痫（epilepsy）的定义：癫痫是一种脑部疾患，特点是持续存在能产生癫痫发作的脑部持久性改变，并出现相应的神经生物学、... </p>
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        <span class="f_r">
        <a href="/article/309fee4e541e51de2e41f21bebb342aa" class="view" title="浏览" target="_blank"><s class="act_sprite"></s> 1271</a> <a href="/article/309fee4e541e51de2e41f21bebb342aa" class="reply" title="回复" target="_blank"><s class="act_sprite"></s> 0</a>
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    <span style="display: inline-block;">2017-07-29</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
</div>

<h5><a href="/article/d63fbf8c3173730f82b150c5ef38b8ff" target="_blank">关于美国政要麦凯恩患有的脑胶质瘤 你想知道的可能都在这里</a></h5>
        <div class="summary">
            <p> 2017-07-23 神外前沿 神外前沿讯，近日，美国参议员约翰·麦凯恩被诊断患有脑胶质瘤的消息，让“罕见病”脑胶质瘤再次进入公众视野。不幸的是，麦凯恩先生患有的是胶质瘤中恶性程度最高的胶质母细胞瘤（GBM），国际上GBM的平均中位生存期只有14个月左右，而老年GBM又是其中最为凶险的。公开资料显示，麦凯恩先生生于1936年，今年已经81周岁了，而通常... </p>
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        <span class="f_r">
        <a href="/article/d63fbf8c3173730f82b150c5ef38b8ff" class="view" title="浏览" target="_blank"><s class="act_sprite"></s> 1005</a> <a href="/article/d63fbf8c3173730f82b150c5ef38b8ff" class="reply" title="回复" target="_blank"><s class="act_sprite"></s> 0</a>
        <a href="/article/d63fbf8c3173730f82b150c5ef38b8ff" class="zan" title="" target="_blank"><s class="act_sprite"></s> 2</a>
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    <span style="display: inline-block;">2017-08-21</span>
    <span> - <a href="/home/user/6974ce5ac660610b44d9b9fed0ff9548">天使在人间</a></span>
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<h5><a href="/article/2dffbc474aa176b6dc957938c15d0c8b" target="_blank">青少年癫痫用药的注意事项</a></h5>
        <div class="summary">
            <p> 少年儿童正处于生长发育的时期，更应该注意癫痫的用药问题。那么少年儿童的癫痫患者用药应该注意些什么呢?1、应注意发育期问题儿童在发育过程中会出现很多生理方面的改变，一个已经不再有癫痫发作的患儿可能突然又出现发作，这并不一定意味着所用的抗癫痫药失效或癫痫恶化，而可能是需要改变抗癫痫药的剂量或种类。尤其在青春期时，这段时间癫痫患儿容易出现癫痫发作或者复发，另... </p>
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        <a href="/article/2dffbc474aa176b6dc957938c15d0c8b" class="view" title="浏览" target="_blank"><s class="act_sprite"></s> 1776</a> <a href="/article/2dffbc474aa176b6dc957938c15d0c8b" class="reply" title="回复" target="_blank"><s class="act_sprite"></s> 3</a>
        <a href="/article/2dffbc474aa176b6dc957938c15d0c8b" class="zan" title="" target="_blank"><s class="act_sprite"></s> 3</a>
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    <span style="display: inline-block;">2017-07-23</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
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<h5><a href="/article/e94f63f579e05cb49c05c2d050ead9c0" target="_blank">首次癫痫发作后应在多长时间内避免开车？</a></h5>
        <div class="summary">
            <p> 2015-02-16 医脉通神经科 在大多数发达国家，人们普遍认为那些出现首次癫痫发作的患者，应在一段时间内避免驾驶行为。然而，对于这段禁驾时间应该是多长，各国、甚至各州、省之间却有明显不同看法。在英国，其驾驶员和车辆牌照局（theDrivingandVehicleLicensingAgency）所属驾驶员医疗集团规定，首次出现无诱因癫痫发作的患者，应... </p>
            
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        <a href="/article/mlist/2f55707d4193dc27118a0f19a1985716" class="mod_cat" target="_blank">健康护理</a>
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        <a href="/article/e94f63f579e05cb49c05c2d050ead9c0" class="view" title="浏览" target="_blank"><s class="act_sprite"></s> 983</a> <a href="/article/e94f63f579e05cb49c05c2d050ead9c0" class="reply" title="回复" target="_blank"><s class="act_sprite"></s> 0</a>
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    <span style="display: inline-block;">2017-07-23</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
</div>

<h5><a href="/article/c930eecd01935feef55942cc445f708f" target="_blank">哪些癫痫患者可以安全地驾驶？</a></h5>
        <div class="summary">
            <p> 2017-01-11 神经电生理 研究人员正在进一步确定，应该允许哪些癫痫患者开车。一篇新分析认为，诸如癫痫发作持续时间和意识受损等因素，会影响后来的驾驶功能。第一作者、美国康乃狄克纽哈芬耶鲁医学院神经与神经科学暨神经外科教授、癫痫专家HalBlumenfeld博士表示，我们的目标是，找出告知医师与患者是否可安全驾驶的相关线索。 他表示，很多时候，可以... </p>
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        <span class="f_r">
        <a href="/article/c930eecd01935feef55942cc445f708f" class="view" title="浏览" target="_blank"><s class="act_sprite"></s> 1216</a> <a href="/article/c930eecd01935feef55942cc445f708f" class="reply" title="回复" target="_blank"><s class="act_sprite"></s> 0</a>
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    <span style="display: inline-block;">2017-07-31</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
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<h5><a href="/article/8fb21ee7a2207526da55a679f0332de2" target="_blank">癫痫病人能不能开车？</a></h5>
        <div class="summary">
            <p> 2016-11-09 中国癫痫病友会  癫痫病人能不能考驾照开车?对于很多人来说，车的诱惑力都是很大的，大多数癫痫患者也是爱车一族的，可是由于自己的疾病只能与车绝缘了，癫痫是一种脑部神经细胞异常的疾病，他发作时对身体的损害是极大的，有时甚至可能造成生命的危险。生活中癫痫患者都有很多的禁忌，希望每位患者都能对自己的身体和生命负责，多多听取医生的意见，不能... </p>
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        <span class="f_r">
        <a href="/article/8fb21ee7a2207526da55a679f0332de2" class="view" title="浏览" target="_blank"><s class="act_sprite"></s> 2859</a> <a href="/article/8fb21ee7a2207526da55a679f0332de2" class="reply" title="回复" target="_blank"><s class="act_sprite"></s> 4</a>
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    <span style="display: inline-block;">2017-07-22</span>
    <span> - <a href="/home/user/66f041e16a60928b05a7e228a89c3799">叶姐</a></span>
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<h5><a href="/forum/thread/e21e4e58ad9ab56e8a4634046da90113" target="_blank">综合医院焦虑、抑郁与躯体化症状诊断治疗的专家共识</a></h5>
                <div class="summary">
            <p> 中华医学会神经病学分会神经心理学与行为神经病学组  中华神经科杂志失眠、疼痛、乏力、全身不适、异常感觉及心血管、消化、呼吸、泌尿生殖系统自主神经功能失调症状是焦虑、抑郁与躯体化患者的常见躯体症状和主要就诊原因，情感症状往往被躯体症状掩盖，难以引起重视。综合医院医生不能正确识别处理，造成患者病情迁延，辗转各处就诊，大量消耗医疗资源，损害社会功能，甚至加剧... </p>
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</div>
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                        <a href="/forum?catid=a0a080f42e6f13b3a2df133f073095dd" class="mod_cat" target="_blank">心理交流</a>
                        <span class="f_r">
                <a href="/forum/thread/e21e4e58ad9ab56e8a4634046da90113" class="view" title="浏览" target="_blank"><s class="act_sprite"></s> 1425</a> <a href="/forum/thread/e21e4e58ad9ab56e8a4634046da90113" class="reply" title="回复" target="_blank"><s class="act_sprite"></s> 0</a>
                <a href="/forum/thread/e21e4e58ad9ab56e8a4634046da90113" class="zan" title="" target="_blank"><s class="act_sprite"></s>0</a>
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    <span style="display: inline-block;">2018-01-25</span>
    <span> - <a href="/home/user/64697505ab8add3aa07f761321d06014">燕12121</a></span>
</div>

<h5><a href="/forum/thread/936a40b7e8eea0dc537e5f2edee1387a" target="_blank">癫痫？</a></h5>
                <div class="summary">
            <p> 癫痫？宝宝出生很顺利，但是十五天后出现一次身体僵硬，拳头紧握，眼睛上翻，脸色通红，背拱起，两秒就好了，俩个月的时候出现了两次，三个月有一天六次，赶紧去西安市儿童医院做检查住院，在医院各项检查正常，也没有遗传基因，开了些营养药，过了二十天复查时宝宝再次抽搐，抽搐与上次一样，医生臆断癫痫，就给开了得巴金，吃了四天后我自己给擅自停药，停药十五天后又出现抽搐，... </p>
            
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                <a href="/forum/thread/936a40b7e8eea0dc537e5f2edee1387a" class="view" title="浏览" target="_blank"><s class="act_sprite"></s> 1153</a> <a href="/forum/thread/936a40b7e8eea0dc537e5f2edee1387a" class="reply" title="回复" target="_blank"><s class="act_sprite"></s> 2</a>
                <a href="/forum/thread/936a40b7e8eea0dc537e5f2edee1387a" class="zan" title="" target="_blank"><s class="act_sprite"></s>0</a>
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    <span style="display: inline-block;">2017-07-29</span>
    <span> - <a href="/home/user/7f3fcfed9109f27a4b9e4abd169d6e43">大勇*不放弃</a></span>
</div>

<h5><a href="/forum/thread/c182f930a06317057d31c73bb2fedd4f" target="_blank">小孩做了手术，原在医院开的左乙拉西坦还有余药，如有需用着，可转让。</a></h5>
                <div class="summary">
            <p> 小孩做了手术，原在医院开的左乙拉西坦还有余药，如有需用着，可转让。 </p>
            
        </div>
        <div class="pl_time">
                        <span class="f_r">
                <a href="/forum/thread/c182f930a06317057d31c73bb2fedd4f" class="view" title="浏览" target="_blank"><s class="act_sprite"></s> 877</a> <a href="/forum/thread/c182f930a06317057d31c73bb2fedd4f" class="reply" title="回复" target="_blank"><s class="act_sprite"></s> 2</a>
                <a href="/forum/thread/c182f930a06317057d31c73bb2fedd4f" class="zan" title="" target="_blank"><s class="act_sprite"></s>0</a>
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我的故事

沫筱&无殇￡

坚持下去吧，总有一天会好的

患了十年癫痫病，好痛苦。我到底该怎么办
百年树人

活着

癫痫发作频繁
娇艳?的巢

用此生的无限爱和友善弥补自己的宿命中的过失
娇艳?的巢

天佑我儿，平安度过每一天。
娇艳?的巢

愿儿子早日恢复健康体魄
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